Saturday, November 30, 2013

HIV community groups & networks demanding for high quality TB services – let the dream come true



WORLD AIDS DAY 2013 - Experiences of Universal Health

In the recent International Congress of AIDS of Asia-Pacific/ICAAP in Bangkok I couldn't find traces of concern around HIV-associated TB deaths except few ad-hoc basis discussions on HIV related co-morbidities with TB being a small component. The speakers and participants across the Congress spoke volumes on rights, stigma, discrimination, legal issues, access and mobilization but kept mostly quiet on the burning TB/HIV issues of the Asia-Pacific regions.

The statistics of South-East Asia[1] say, every year more than 50,000 people die due to HIV-associated TB, less than 40% TB cases know their HIV status, less than 40% PLHIV get screened for TB and access of PLHIV to INH prophylaxis is more than negligible.

Demand for newer diagnostics for rapid diagnosis of TB/DR-TB was not heard in the voices of community networks who otherwise made their presence strongly felt across ICAAP.

A prominent member of Asia-Pacific TG network told me, ‘The problem of TB lies in your overall poor advocacy.’

A known friend of the PLHIV network of an Indian state commented, ‘I am really not bothered much about HIV now, but TB scares me hell of a lot, almost every time.’
‘Why don’t you discuss about TB within your group?’ I asked her.
‘I really don’t know what to say except cough for more than 2 weeks.’ She replied pessimistically.

The ICAAP experience made of aware of the fact that we are failing miserably to sensitize people, providers and policy makers on TB and its implications in the background of HIV. It is a grave problem and we must find the solutions.

Limited sphere of advocacy where the advocates don’t really want to venture out of their comfort zone is a big issue in TB. As far as international conferences are concerned the advocacy efforts, in true sense are yet to cross the boundaries of the World Lung Conferences.

Working with HIV community networks might be highly challenging to many TB professionals and advocates, but the fact is 'need for appropriate TB care' is maximum with those networks. When mobilization is their operational expertise these networks need proper guidance to know the right path for consolidating their mobilization and demand generation activities on TB. That’s exactly where we are repeatedly failing to produce any impact.

It is important to bring TB in the agenda and action plans of the international, regional, national and local level HIV community networks (Sex Workers, IDUs, MSM, TG and PLHIV). Let community people speak freely and firmly about their TB problems together with HIV and demand for health facilities enabling rapid TB diagnosis and early treatment. Let there be stronger demand from the community groups for ready access to 3 Is (Intensified TB screening, INH prophylaxis and Infection Control), ART for all HIV-infected TB patients and combined screening of the pregnant mothers for TB and HIV.

TB/HIV collaboration in its true sense can only happen when HIV community groups and networks will play their advocacy cards of TB and HIV on the same table to ensure the right placement of the right package of services for them.

This is the high time we, the not-so-visible TB advocates in the AIDS Conferences, facilitate the process, with utmost sincerity and dedication.

Sugata Mukhopadhyay
Universal Health




[1] Global TB Report 2013

Violent love story of a sexy disease and an unsexy disease – We need to find its end, forever




WORLD AIDS DAY 2013 - message from Universal Health
      
Being primarily an air-borne infection TB has lost the glamour of a ‘sexy disease.’ But the naked truth is, TB is not selective as HIV and can affect anyone in the society. Unfortunately, those infected by HIV have greater chance of TB infection or active TB disease from a latent infection. The intimacy with the sexiest disease on earth makes TB more noticeable over last couple of decades. And in today’s world Drug-Resistant TB has already spread the dread across the globe the way HIV did decades back before the emergence of ART.

The fact is, the love-story between a sexy disease and an unsexy disease is still going strong. Both the diseases carry tons of stigma. While HIV looks for specific openings like unprotected penetrative sex, needle/syringe sharing and pregnancy, delivery & breast-feeding of an infected woman to trigger and maintain its transmission, TB has the potential to hit anyone, particularly those lying within the territory of poverty and marginalization with poor access to health services. 
    
Actually, both the diseases, most of time target the same groups of people – poor, illiterate, living in unhealthy living conditions, having limited livelihood options that often lead to migration or sex work or trafficking, injecting drugs as the last resort of poverty-struck recreation and those having no/inadequate access to services due to various reasons including those identifying them in different gender.

Once HIV manages to get the entry into the body, it makes the things easy for TB to show its sting. Similarly TB boosts up HIV in its progression to AIDS. 

Where will you find such violent and virulent loves on earth ? 

 Most of the people infected by HIV get killed by TB.

TB is an old traditional killer and it kills more when it makes love with HIV.

Ideally, all persons with known HIV positive status should have sound knowledge of TB so that they can demand and present for TB screening on slightest doubt. Ideally, rapid and new diagnostic techniques should be in place for early diagnosis of TB among HIV infected, affected and vulnerable population groups. Ideally, all the TB affected persons should be offered HIV counseling and testing services. Ideally, all the HIV-infected persons should have access to prophylactic services of INH and CPT. Ideally, all HIV-infected TB cases should be put on ART without waiting for their CD4 results.

Ideally, TB and HIV professionals, TB and HIV program managers, TB and HIV healthcare providers, and TB and HIV policy makers should have free, frequent and unprejudiced interactions at all levels, national, province, district and sub-district.

Ideally, whenever there is a talk/discussion/debate/seminar/conference/workshop/exhibition on HIV, TB should be the integral part of that and vice versa.

How much we have internalized these ideal conditions which mostly exist in the documents? How much we are geared up to create those ideal conditions? How strong is our partnership to make those ideal conditions happen in reality?

After all ‘ZERO HIV DEATH’ without stopping TB sounds like a fantasy.

Let’s no more fantasize and get into some real action to disrupt and terminate the violent love-story of a sexy disease and an  unsexy disease, forever.

The time is right here.

Sugata Mukhopadhyay
Universal Health